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Financial Planning for People with Chronic Illness or Disability in Australia

By Roopon Team8 min read

The Financial Impact of Chronic Illness and Disability

Chronic illness and disability create a compounding financial challenge: income is often reduced while expenses increase. The Grattan Institute estimates that Australians with disability spend an average of $15,000–$20,000 more per year on disability-related costs than non-disabled people, while also earning approximately 20% less. Understanding and accessing all available support mechanisms is the foundation of financial planning in this context.

  • Income reduction: Chronic illness and disability often reduce work capacity - through part-time hours, inability to maintain employment, or complete workforce exit. Each scenario has different income replacement options (income protection insurance, Disability Support Pension, employer TPD insurance).
  • Additional costs: Medical appointments, specialist fees, allied health (physio, OT, psychology), medications, mobility aids, home modifications, transport assistance, and personal care all create ongoing costs beyond the typical household budget.
  • Superannuation impact: Years out of the workforce or on reduced hours mean reduced SG contributions and lower super balances. The super gender gap is largely driven by the same dynamics - career interruption due to health and caring responsibilities.
  • Insurance claim complexity: Income protection and TPD insurance claims for chronic illness are frequently contested by insurers, particularly for mental health, fatigue conditions (ME/CFS, long COVID), and fluctuating conditions. Understanding policy definitions before purchasing - and at claim time - is critical.
  • Carer financial impact: Partners and family members who take on informal caring roles face their own financial consequences - reduced work hours, super gaps, career interruption, and psychological costs. Carer financial planning is as important as the person being cared for.

The NDIS: Funding, Planning, and Financial Impact

The National Disability Insurance Scheme (NDIS) provides individualised funding for Australians under 65 with a permanent and significant disability. NDIS funding is not income - it is provided in kind through approved supports - but it has significant financial implications for participants and their families.

  • NDIS funding is not taxable income: NDIS plan funding used to purchase disability supports is not assessable income for tax or Centrelink purposes. It does not affect DSP, Carer Payment, or JobSeeker entitlements.
  • Reasonable and necessary supports: NDIS plans fund supports that are 'reasonable and necessary' - directly related to the participant's disability, not otherwise funded by other systems (Medicare, state health), and represent value for money. Common funded supports: daily personal activities, therapy, assistive technology, home modifications, transport, supported independent living.
  • Plan management options: Agency-managed (NDIS pays registered providers directly), plan-managed (a plan manager pays approved providers, registered or unregistered), or self-managed (participant pays providers and claims reimbursement). Self-management provides the most flexibility and access to non-registered providers.
  • NDIS and Centrelink interaction: The NDIS Mobility Allowance, which previously supported transport costs, was largely absorbed into NDIS plans. NDIS participants may still receive Carer Payment or DSP - funding types do not overlap but eligibility is separate.
  • NDIS financial planning: NDIS participants with significant plans (over $100,000/year) benefit from working with a financial planner experienced in disability - particularly around housing (Specialist Disability Accommodation funding), supported employment, and interaction with inheritance or trust structures.
  • Special Disability Trusts (SDTs): Established under the Social Security Act, SDTs allow family members to provide for the future care of a person with disability without affecting their Centrelink entitlements (up to the SDT concession amount - $783,750 in 2024–25). SDTs receive CGT and stamp duty concessions. Require a corporate trustee and formal trust deed.

Insurance: The Most Important Financial Protection

For people with chronic illness or disability, income protection and TPD insurance are the most critical financial protection tools. Understanding what you have, what it covers, and how to claim is essential.

  • Check existing super insurance first: Most Australians have default life, TPD, and income protection cover inside their super fund. Login to your fund and review what you hold. Premiums are deducted from your super balance. This cover may be sufficient or may need supplementing.
  • Own vs any occupation TPD: 'Own occupation' TPD pays if you cannot work in your specific occupation. 'Any occupation' pays only if you cannot work in any occupation for which you are reasonably suited by education, training, or experience. Own occupation is significantly more valuable - particularly for skilled workers with chronic illness - but is no longer available inside super.
  • Income protection definition of disability: Policies use 'own occupation' or 'any occupation' definitions for income protection too. For chronic illness (fatigue conditions, mental health, autoimmune disease), the policy definition and exclusion clauses determine whether a claim succeeds.
  • Pre-existing condition exclusions: If you purchase income protection or life insurance after a diagnosis, the insurer will typically exclude the pre-existing condition. Review all existing policies for exclusion clauses and obtain legal advice before cancelling any existing cover.
  • AFCA complaints process: Insurance claim disputes - particularly for mental health, fatigue, and fluctuating conditions - are frequently resolved in the claimant's favour through AFCA. Do not accept an insurer's initial rejection without seeking advice from an insurance lawyer or financial counsellor.
  • Income protection tax deductibility: Income protection premiums paid outside super are tax-deductible. Benefits received are assessable income. Inside super, premiums reduce your balance but income protection benefits paid to the fund and then to you are taxed differently - obtain advice on the optimal holding structure.

Wealth Building Within Constrained Circumstances

Financial security for people with chronic illness or disability requires a modified approach to wealth building - one that accounts for income volatility, higher costs, and the need for accessible (not locked-away) savings.

  • Emergency fund priority: Three to six months of expenses in an accessible high-interest savings account is critical when income is uncertain or health costs are unpredictable. For people with fluctuating conditions, a larger six-to-twelve month buffer may be appropriate.
  • Accessible investments over super: Superannuation is preserved until preservation age - inaccessible during the most financially vulnerable years of working life. Building an investment portfolio outside super provides liquidity for health-related costs. ETF-based portfolios with no lock-in periods are appropriate.
  • Centrelink asset test planning: Assets above the Centrelink test threshold reduce pension payments. Super in accumulation phase (for those under Age Pension age) is exempt from the assets test. Investment in exempt assets (primary home, pre-paid funeral bonds up to $15,490, some life insurance) can preserve entitlements.
  • Disability-specific banking products: Some lenders and credit unions offer accounts with fee waivers for Centrelink recipients and people with disability. Commonwealth Bank, NAB, and Bendigo Bank offer fee-free accounts for concession card holders.
  • National Debt Helpline: Free telephone financial counselling (1800 007 007) for Australians in financial difficulty. Financial counsellors with disability expertise can assist with Centrelink appeals, debt negotiation, and budget support.

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